Search for a Reason?

So Tuesday January 17th we started the day again with our visit from OT/PT. They are really happy still with Brinleigh's progress. It was a quick visit this week so we didn't do much. They came late and we needed to be to PCMC for her next appointment. So maybe next week we will get more out of there visit.

We then went to PCMC to see ENT/ Genetics for Brinleigh's hearing loss. We met with the first doctor that was really interested in finding out why she lost her hearing. CMV is a virus that we discovered Brinleigh has, they tested her for it after discovering her loss. The doctor seems to think that may be the leading cause. :( So he is sending for her newborn blood screen that they store, so they can see if she had it at birth or if it's something she contracted. We may then be able to get some more answers. He did state that it may answer some questions or it may not. So Another waiting game to see what comes from this.... There isn't anything that can be done about it now, the damage is done. But it's really heart wrenching knowing that if they caught the virus sooner, we could have helped her. Let's just hope that there isn't anything else that it has or will affect. A bit scary! Ok, REALLY SCARY!
The second doctor we saw was for Genetics, to look into her hearing that way. We went through our family tree's a little bit. He didn't seem to think her being deaf has to do with genetics at this point. There isn't anyone deaf or with bilateral hearing loss in our families.

She has a few factors that were against her:
Extreme Prematurity
Being on a Ventilator
Medications
CMV Virus
8% of babies that spend time in the NICU end up with hearing loss, for unknown reasons (according to the genetics doc.)

But we are to start with the Newborn blood and see where it leads us... it's hard, I want to know but I also feel a little frustrated that maybe something could have been done to change her outcome, and I hate that feeling. It makes me angry & sad, but now we are faced with this challenge and are doing our best to help her and be supportive.