Thursday, January 12, 2012

Busy Day....lots of firsts

Wednesday January 11th was a jam packed day of appointments and firsts.
It started off with our weekly OT/PT therapy session. Cari one of her therapists which hadn't come the last two times because of the holidays, she said she noticed a huge difference in Brinleigh. It good to hear other people notice a differenc in her :). Today Brinleigh kept turning her head to find me and then she would smile! It was adorable. She also followed Cari and cuddled with her without losing it. She said her shoulder muscles are more relaxed from before as well. She was so excited with the bond she felt this time. Pat the other therapist, gave Brinleigh her weekly massage. Lucky girl right! Brinleigh is getting more ok with it as the weeks go on. Overall they said she has made huge strides. Yay :)

Then on to her next appointment. We packed up and headed to the audiologist. Brinleigh is currently Deaf, she has profound bilaterial hearing loss. So today Brinleigh got her first set of hearing aides! Brinleigh is to wear her hearing aides as much as possible when she is awake. They are the tiniest little ear molds! We are just to watch her and see if we notice any changes and if she reacts to any sounds. We will be going back in two weeks for some booth testing. But they have to give her time to learn to process the sounds that she may be hearing if any. With the type of hearing loss that Brinleigh has she may be eligible for Cochlear Implats if we decide to go that route if hearing aides aren't sufficiant. We are hoping the very best for our Brinleigh. This has been really hard to take in. It's so difficult knowing how much she is missing. We are taking this in strides and learning as we go. It's a new world we are entering, and jumping in with both feet!

Then on the agenda we had Orientation with the USDB. There were 3 gals that came to our home. Two were deaf, One communicates purely with ASL with an interper, the other had cochlear implants and used LSL to communicate. So they came an gave us a presentation about the two different options and types of communication that they offer. One is the ASL (American Sign Language) so we can choose to teach her sign language or we can choose LSL (Listening Spoken Language) and she can learn to listen to what she can (if any with amplification), read lips, & speak. I guess with the program you are to pick one option or the other! Which I find to be a odd, I think they should offer everything and see what they child can do! Why on earth wouldn't I want to pick the LSL (have my child speak, if she can) but I also don't want to only push that option if she can't pick it up. So why not offer her ASL as well. It's going to be a hard decision and have NO IDEA which way to go... I think they said with the ASL they do a little more of everything, but w/ LSL that's it. Next I will be going to preschools to see kids that do both the languages to see how they interact, there are also parent groups that I can visit. Let's hope they can help us to make the right decisions. Well lots of decisions and things to learn, here we go! Wish us LUCK!
Here's Brinleigh with her hearing aides!

So today we got her FIRST pair of hearing aides & meet our FIRST group of Deaf people!

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