We went to go and see a kidney specialists, Nefrologist. Since her kidney stones were getting worse on her last ultrasound in Dec. we were referred to Dr. Mauch. She collected some urine from Brinleigh and immediately they were able to see that she had calcium crystals in it. Which she said may or may not hurt her when she pees, she can't really tell us. :( So besides telling me to make sure she is getting enough liquids, there is nothing else that we can change at this exact moment. Other than she did want to have some blood work done to check all her calcium, vitamin D, protein, etc. levels. Then when we know what that shows there may be some medications that could help. Brinleigh is not to have any extra fortifier in her diet, other than breastmilk & rice cereal. They will keep close tabs on her and see her regularly to make sure they don't start blocking her uriters (sp?) This is not a common thing in babies, but she said, it has to do with her being so young and immature when they started giving her WAY to much calicum and protein that her body couldn't process it correctly, which is why we are in this situation. There is such a fine line with these little ones, cause she needed the extras to help her bones, but she just couldn't handle it. Poor girl!! The Nefrologist was just in AWE with Brinleigh though... She saw her at PCMC in the NICU and was amazed at how far she has come! She just kept repeating what a miracle baby she is!!! And I would have to agree!
So after leaving the Nefrologish, we stopped at the NICU to visit, & JaeLynne which was one of her primary care nurses that we just love was working that day!! She couldn't scoop Brinleigh up fast enough! We had a quick lunch and visit with her, and it was great!!
Then off to the CRAPPY second part to the appointment.. She had to have her blood drawn! Brinleigh did NOT like that what so ever! She has always been good at holding her breath when upset, let's just say I haven't seen her that upset since well, leaving the NICU. They had to poke her 3 times! Cause they tried in her left arm, but it had to much scar tissue, they couldn't get it. Note to self, no left arm draws in the future. So they moved on to the right. Now it's a waiting game to see what her results are........ dun dun dun.... to be continued.
Poor girl.... see her bandaids :(
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