It's been about a week since the last posting. Brinleighs tests have come back negative on her stool except for some that take time to 'grow out' to see if there are any issues. She had her feeding tube taken out early last week which means all her feedings and medications are now being done orally. She continues to hold her breath and get mad which causes her to brady which is not good. She about gets to the stage of passing out before she will breath again. Obviously this is not a good thing. They are meeting today to review all her medications. This means more potential changes which is for the good but still hard because you don't know how she will react to the changes. Interestingly the Dr. that looked over Brinleigh and Maeleigh when they were born comes on shift at Primaries this week. We wonder what that reunion will be like for everyone. We expect it to be a good reunion nothing bad.
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