Just as we think there are no new tests to put Brinleigh through they find one. She still has her purple spells and bradys so they continue to be stumped. So one of the nurses gave some thought to Brinleigh and mentioned that she seems to have a cough at times. So they did what is called a swallow test and found that she is aspirating. The test found that as she eats and pauses there is a small build up of fluid at the back of her mouth. When she starts to eat again the reflex that closes off the trachea doesn't close properly so then a small amount of food/liquid goes into the lungs which is not good. The concern is if allot of liquid gets in the lungs it could cause her to choke, suffocate or give her pneumonia from the bacteria. They did find that if they give her thicker liquid she does not aspirate. So the treatment for now is to thicken her breast milk and let the reflex develop and test again. It is a significant worry because we all know liquid in the lungs is not a good thing. This may be why they have struggled with her oxygen levels and who knows if it will help with her purple spells.
Today she gets her eye checkup. Soon they will redo the MRI and take more 'slices' so they can better see the location of her tumor and if it has any effects on her swallowing or her hearing. They will also look closer at her hearing with the MRI.
The setbacks are starting to take a toll on Dustin and Carrie as they so want to get Brinleigh home it is very hard to have more tests find more issues for Brinleigh which gives greater concerns for Brinleighs current and long term health.
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