Today on Halloween she is a little witch. Her Mom alwas wanted to be a witch with a green face every Halloween.
They have met with the neurosurgeons and determined that she is too small to remove the tumor at the back of her neck. It is too risky. If she was larger and around the 10 lbs they would do the surgery now. The area that the tumor is in would be affecting her swallowing if there is a problem. Brinleigh is doing great eating and swallowing. They will re-look at the tumor the first part of December but watch her till then.
There is still concern about her hearing and we are all very hopeful she does not have complete hearing loss but only time will tell. She is eating good... maybe too good as she is starting to be a little on the pudgy side. She now weights about 5 lbs 9 oz.
They have messed a little with her oxygen turning it back up to try to get her to settle down. It is frustrating as she has to be on a low flow of oxygen to send her home. She is still irritable and holds her breath and turns red when she gets mad. When she does that we just say she is being Brinleigh.
She has to be good with no episodes of up and down for 7 days before she can go home. Right now we are hoping again for around thanksgiving.
SHE IS SOOOOOO CUUUUUUTE!!! Happy Halloween!!!!
ReplyDelete